Alot has happend in the last two weeks.
Emily did very well at her concert. It was about an hour and half event. It had all the fifth graders from all the schools. They were honoring heroes. The organization honored a local hero that has been helping the local community for over 40years. I thought it was pretty cool. Emily sang with 35 other students one from each school. There was about 2000 people there. She did excellent. I am very proud of her being picked.
Jace is doing well no real issues with him. He is enjoying the outdoors when he can. School is going well for him and he seems to be enjoying it.
Benjamin well he is a mess. He is all over the place. Not listening at home or school. Stealing things, major behavior issues. We are in the works to try to get some help. It is just not easy his main doctor is gone for up to 6 months. His new doctor can't do anything with meds. His other doctors that can are very difficult to get a hold of and get in. We have is case manager working on somethings for us so we shall see. He also has a helper in the house now to help control some of the behavior issues and get him some one on one time to help release some of his built up energy. We shall see if we see improvement.
Ari she went to the doctors to get her hearing checked and the say all is good. However the speech therapist says that she has a phonology articulation disorder. She wants to see her atleast 45minutes a week. We are starting the process to get the school to recognize that there is an issue and for them to take the lead with therapy.
Eli well his blood sugar is pretty much all of the place. We don't know why. Doctors are looking into something on his pancreas. They are doing some test today and lab work. I hope they can figure out whats going on. If they are considering TPN. I am not super thrilled about it. Right now he can't handle really leaving the house for any extensive amount of time. If it is the only thing that helps him live life to the fullest then I guess that's what has to happen.
Me I am doing ok started to gain some weight. Still not where I would like to be. I know it will take time so I have to be ok with it for now. We started some new things in the house to help lower the stress. Which are new ways of handling the house work and the kids behaviors. We have gotten super organized and I am very pleased with it. It is totally helping keeping up with the disorganization we had. We also started doing a different for us house cleaning. So far it has definitively helps make the work quicker and easier to maintain. The reward and chip system has worked so far for most. Ben is the only one that doesn't seem to really care. However I feel that it is better than what we were doing it.
Gotta go hope you have a great day .
"The mind is like a fertile garden in which anything that is planted, flowers or weeds will grow ." BL
Friday, February 24, 2012
Wednesday, February 8, 2012
two week update
In the last 2 weeks many things have happened. Here is an overview:
Eli's new nutritionist wants to change him over to a new formula called peptamen with fiber. Don't know a whole lot about it but some of the ingredients are concerning. They also want to increase his fluids an additional 80ml. To some that may not seem like alot however he is currently getting 270 of free water and this would bring him up to 350ml in a 24hr day. They also think he is inpacted and is ordering a KUB Xray of the kidneys ureters and the bladder to confirm there suspicions or change there plan of attack. Personally i don't think he does but I am not a doctor. So we shall see. They also want us to increase his amount of cornstarch. So far we have increased it little by little and have put it in to his whole day he is doing very well with it so far. Today is eli's tuberversary. 2yrs ago today my little man had a surgery that allows him to live. It is very real thinking that he is here because of his tubie. We will be celebrating this occasion tonight with our family and his nurse. He will have his leapfrog cake and we will be making a cake so we can all celebrate together. It is a little hard for me to look back at the journey that we have been on this last two years. All the things that could of happened and has happened. I only can hope that this year will not bring too much but only time will tell. You know eli he only does things big. On a positive note eli has learned help and he is vocalizing by squawking and letting us know he isn't happy or he needs something. We are pushing more signs with him and starting to use a program to help him tell us what he wants. This will be a slow process but i think he will do well he is a very smart little man.
Ari she is getting ready for her 5th birthday. She has invited her entire class. She is super excited to turn 5. She has so many ideals on what she wants. Mainly princess things and anything purple pink.
Ben wow what can I say he has been just out of control. School is having issues with him stealing kids stuff and hiding it in his desk. Behavior at school and home has just been crazy. Stimming not sitting down screaming and just being an antagonist. We have no ideal whats going on no changes that would effect him at the house. We are looking getting a helper for after school. The helper would help him get home work done and help get rid of some of his extra energy. We meet today to see what we think.
Jace he is doing pretty good he has more good days lately then bad. He is enjoying school and he is getting really good at math.
Emily she is getting ready for a district choir. I am super excited to hear her sing. She is also contemplating being in the school talent show. She is torn between a couple of songs. She got classes to help her read. I think they look sharp on her and hopefully they will help her with some of the blurriness that she is having.
Myself I am doing pretty good health wise. Still no real weight gain. I am trying not to OCD over it but it is not easy. I went from weighing every couple of days to just once a week. I have started a new knitting project it is a turtle and a frog that are reversible. Work on it is slow but i am getting it done.
We as a family have started church two weeks ago. It is called universal unitarian church shawnee mission. It is an amazing church. I am very pleased to be in an organization that has the same views and beliefs that i have.
Well have to go for now. Smile if you haven't today.
Eli's new nutritionist wants to change him over to a new formula called peptamen with fiber. Don't know a whole lot about it but some of the ingredients are concerning. They also want to increase his fluids an additional 80ml. To some that may not seem like alot however he is currently getting 270 of free water and this would bring him up to 350ml in a 24hr day. They also think he is inpacted and is ordering a KUB Xray of the kidneys ureters and the bladder to confirm there suspicions or change there plan of attack. Personally i don't think he does but I am not a doctor. So we shall see. They also want us to increase his amount of cornstarch. So far we have increased it little by little and have put it in to his whole day he is doing very well with it so far. Today is eli's tuberversary. 2yrs ago today my little man had a surgery that allows him to live. It is very real thinking that he is here because of his tubie. We will be celebrating this occasion tonight with our family and his nurse. He will have his leapfrog cake and we will be making a cake so we can all celebrate together. It is a little hard for me to look back at the journey that we have been on this last two years. All the things that could of happened and has happened. I only can hope that this year will not bring too much but only time will tell. You know eli he only does things big. On a positive note eli has learned help and he is vocalizing by squawking and letting us know he isn't happy or he needs something. We are pushing more signs with him and starting to use a program to help him tell us what he wants. This will be a slow process but i think he will do well he is a very smart little man.
Ari she is getting ready for her 5th birthday. She has invited her entire class. She is super excited to turn 5. She has so many ideals on what she wants. Mainly princess things and anything purple pink.
Ben wow what can I say he has been just out of control. School is having issues with him stealing kids stuff and hiding it in his desk. Behavior at school and home has just been crazy. Stimming not sitting down screaming and just being an antagonist. We have no ideal whats going on no changes that would effect him at the house. We are looking getting a helper for after school. The helper would help him get home work done and help get rid of some of his extra energy. We meet today to see what we think.
Jace he is doing pretty good he has more good days lately then bad. He is enjoying school and he is getting really good at math.
Emily she is getting ready for a district choir. I am super excited to hear her sing. She is also contemplating being in the school talent show. She is torn between a couple of songs. She got classes to help her read. I think they look sharp on her and hopefully they will help her with some of the blurriness that she is having.
Myself I am doing pretty good health wise. Still no real weight gain. I am trying not to OCD over it but it is not easy. I went from weighing every couple of days to just once a week. I have started a new knitting project it is a turtle and a frog that are reversible. Work on it is slow but i am getting it done.
We as a family have started church two weeks ago. It is called universal unitarian church shawnee mission. It is an amazing church. I am very pleased to be in an organization that has the same views and beliefs that i have.
Well have to go for now. Smile if you haven't today.
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