Its has been interesting couple of days. They have been stressful and kinda mellow all in one. It has been pretty difficult to deal with some of the stress that has happened over the last couple of weeks. The frustrations with so many things. Holidays have always been my worse. Then with all the new things with Eli and all the normal things that stress people out during this time of the year. We have made some more changes to hopefully decrease the amount of stress in the house. We shall see in the next week or so. Heather and I have been working out and spending more downtime to just decompress and that has really helped us I feel just to breath for a few. Thanks to all who answered my stress question on Facebook it was nice to see how others deal with stress.
Ben has had a couple of meltdowns which have lasted for hours. It is so hard sometimes to just ignore and not feed into his screaming fits which he has no control of and has no ideal why he is even upset.
Eli has been doing ok his choking and gagging is still going strong and I am still not sold on the trach idea. I just feel that there has to be some other options. They are saying that we may need to stop the robinal for his secretions due to the heart rate increase that the medication can cause. Mind you I don't remember ever being told that this medication could cause such a problem. We are asking around and getting advice from others on what options that they have heard of. So hopefully when we get this care meeting to discuss we will have some to discuss and see what the doctors say. Right now one of Elis' main doctors says the trach would be permanent. We will just.
Last night we got to go out and see a movie and dinner. We went to a new vegan restaurant it was called Eden Alley super yummy food. It is a total relieve that we found a place that values good food, the healthiness of the food and value. We saw the tower heist. Wow I would totally recommend this movie very funny. I feel that it was a well needed and well deserve night out for us and it was very relaxing and stress free night. Gotta love those times.