Today is eli's surgery day.He will be having a muscle biopsy, spinal tap, blood, urine and skin scrappings. It is just one more step to finding out what's wrong with my tiny man.We arrived at 1235pm. He went back at about 255pm. Things seemed to go well. They did a spinal block and some local anestia. He is soar and really fidgety however overall he is doing as well as we can expect. We were there for about 6 hrs. We are totally spent. We will be headed back to the ronald mcdonald house after med pick up.
I would like to say thank you to all who made this trip possible and to all who have shown us that there are so many generous people in the world that have us in there thoughts and prayers. We can only say thank you. We are so humbled and blessed to have met and connected with and reconnected with on this journey of ours. Many thanks and positive thoughts and prayers go out to all of you. May tonight be uneventful for all.
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